Image

September 23, 2017.

September 23, 2017.

.

Oscar, 50 weeks and 151 days of smiles.

.

Nyack, NY.

.

#weekbyweek #visionquest #dadabeard #epilepsywarrior #scn2a #disabilityawareness #specialneedsparenting #specialneedsmom #corticalvisualimpairment #cvi #sensoryplay #sensoryexploration

Advertisements
Image

September 17, 2017: Oskiefest!

September 17, 2017.

.

The first (annual, we hope) Oskiefest was a reminder of everyone that has supported our family over the past (almost) year.

I continue to struggle to explain the personal transformation I continue to undergo. The only way I can explain it is I feel as though nearly all of me died in the final months of 2016. In 2017, once we were home from the hospital, I regained some sort of consciousness but I’ve had to learn how to live again though some sort of personal rehabilitation. I’ll never be able to accurately put it all into words.

Oskiefest happened because of the family, friends, and community of people that (both literally and figuratively) carried us the past year. We cannot thank everyone enough for their help celebrating Oscar yesterday and for reaching out to us to see how we’re doing. Feeling like people aren’t forgetting Oscar (or us) tightens my chest with every emotion imaginable.

Thank you all a million times over.

.

Nyack, NY.

.

#myyoungmouse #specialneedsparenting #specialneedsmom #disabilityawareness #epilepsywarrior #scn2a

 

DSC_4572DSC_4577DSC_4603DSC_4640DSC_4665

Attach01DSC_4697

September 14, 2017. . Big Little Room is coming. (Little room…

September 14, 2017.
.
Big Little Room is coming. (Little room and baby in background for scale.)
.
#oskiefest #littleroom #gobigorgohome
.
Nyack, NY.
.
#activelearning #sensoryplay #sensoryexploration #specialneedsparenting #specialneedsmom #disabilityawareness #epilepsywarrior #scn2a