September 17, 2017.
The first (annual, we hope) Oskiefest was a reminder of everyone that has supported our family over the past (almost) year.
I continue to struggle to explain the personal transformation I continue to undergo. The only way I can explain it is I feel as though nearly all of me died in the final months of 2016. In 2017, once we were home from the hospital, I regained some sort of consciousness but I’ve had to learn how to live again though some sort of personal rehabilitation. I’ll never be able to accurately put it all into words.
Oskiefest happened because of the family, friends, and community of people that (both literally and figuratively) carried us the past year. We cannot thank everyone enough for their help celebrating Oscar yesterday and for reaching out to us to see how we’re doing. Feeling like people aren’t forgetting Oscar (or us) tightens my chest with every emotion imaginable.
Thank you all a million times over.
#myyoungmouse #specialneedsparenting #specialneedsmom #disabilityawareness #epilepsywarrior #scn2a