December 25, 2017. . Last Christmas night Oscar had 24 seizures…

December 25, 2017.
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Last Christmas night Oscar had 24 seizures after our families left. Today he woke up in Christmas jammies, got a ball pit, met Santa, ate out of a light-up bowl, and had several upgrades to Little Room. Merry Christmas, Oscar. I wish I could give you the world, but today was a start. I love you.
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Nyack, NY.
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#myyoungmouse #mamamama #dadabeard #epilepsywarrior #scn2a #scn2awareness #disabilityawareness #sensoryplay #sensoryplaytime #sensoryexploration #corticalvisualimpairment #cvi #visionquest

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December 14, 2016 / December 14, 2017. . Tonight marks one year…

December 14, 2016 / December 14, 2017.
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Tonight marks one year since we came home together as a family. The first of many milestones to follow. These are not the milestones charted by doctors or laid out in parenting books. Our milestones are ours alone. Every day is a milestone for our family. I love you, boys. (Also, sometimes we celebrate with matching undergarments.)
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Nyack, NY.
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#myyoungmouse #mamamama #dadabeard #pastvspresent #nicustrong #epilepsywarrior #scn2a #scn2awareness #disabilityawareness #specialneedsparenting

December 12, 2017. . At less than a month old, we were told…

December 12, 2017.
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At less than a month old, we were told Oscar may never smile. We’ve been lucky enough to have had 200 days of them. It is the greatest gift of my life. Happy Hanukkah, mouse.
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#myyoungmouse #dadabeard #epilepsywarrior #scn2a #scn2awareness #disabilityawareness #specialneedsparenting

December 1, 2017. . Oscar, 60 weeks, gives ‘em the horn…

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December 1, 2017.
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Oscar, 60 weeks, gives ‘em the horn like Dada.
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#myyoungmouse #weekbyweek #epilepsywarrior #scn2a #scn2awareness #disabilityawareness #specialneedsparenting #sensoryplay

November 18, 2017. . Ankle Foot Orthotics (AFOs) fitting. Every…

November 18, 2017.
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Ankle Foot Orthotics (AFOs) fitting. Every piece of equipment is a weird catch 22: a reminder of disability but an aide towards new possible ability. Thank you to @libsode for helping me see hope in the hopeless today (and for the pictures and cupcakes).
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Nanuet, NY.
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#myyoungmouse #friends #afo #disabilityawareness #epilepsywarrior #polymicrogyria #scn2a #scn2awareness #specialneedsparenting

November 18, 2017. . Ankle Foot Orthotics (AFOs) fitting. Every…

November 18, 2017.
.
Ankle Foot Orthotics (AFOs) fitting. Every piece of equipment is a weird catch 22: a reminder of disability but an aide towards new possible ability. Thank you to @libsode for helping me see hope in the hopeless today (and for the pictures and cupcakes).
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Nanuet, NY.
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#myyoungmouse #friends #afo #disabilityawareness #epilepsywarrior #polymicrogyria #scn2a #scn2awareness #specialneedsparenting